Living with Ehlers-Danlos Syndrome, Type III – Hypermobile

The Invisible Disease

It's Nothing Really What People Say: What It Feels Like:“If you would just walk for x minutes a day, ...” "You're just lazy! What a slug!" “If you would just move more, …” “You just want attention.” “If you would just lose weight, ...” “You’re such a pig!” “If you would just have a positive attitude, ...” “You’re bringing this on yourself!” “You did this, so you should be able to do that.” “It’s all in your head!” “You could do more if yo…

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The Whining Place

AAAAAAAGGGGHHHHH! Experts agree that we are happier if we do not focus on our symptoms. But, sometimes you just have to tell somebody how angry, depressed, or stressed you are about what you are dealing with. Spare your loved ones every now and then by getting it off your chest on this page. I will start you off! I'm Lilah, and I am spitting mad that I can't put weight on my right foot/ankle, which hurts like a banshee, and I can't support myself on a crutch to take its place because the …

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Have You Ever Felt Like A Bobbly-Headed Dashboard Dog?

More than 30 years ago when I was first married, my husband and I lived in a tiny, four-room apartment above his cousin’s garage. One of the rooms was a bathroom, thankfully. But since it was upstairs, the water pressure was non-existent. So, to take a bath, we sat on a one-step footstool in the middle of the tub with a 32-ounce plastic cup from a convenience store. We slowly filled the cup and poured the water on our heads and bodies, one cup at a time. Once when I was taking a bath, …

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Symptoms Yet to Be Recognized

Throw Me A Line! Sometimes, because Ehlers-Danlos Syndrome, Type III – Hypermobile (EDS3) effects so many body parts from head to toe, it can seem as though a list of what is not caused by EDS3 would be shorter than what is. Articles by scientists, medical professionals, and lay people are available in great quantity on the internet. Those articles list a large number of symptoms that are recognized as being a result of EDS3. In truth, there is not one solitary list of every symptom becaus…

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