Living with Ehlers-Danlos Syndrome, Type III – Hypermobile

The Invisible Disease

It's Nothing Really What People Say: What It Feels Like:“If you would just walk for x minutes a day, ...” "You're just lazy! What a slug!" “If you would just move more, …” “You just want attention.” “If you would just lose weight, ...” “You’re such a pig!” “If you would just have a positive attitude, ...” “You’re bringing this on yourself!” “You did this, so you should be able to do that.” “It’s all in your head!” “You could do more if yo…

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The Whining Place

AAAAAAAGGGGHHHHH! Experts agree that we are happier if we do not focus on our symptoms. But, sometimes you just have to tell somebody how angry, depressed, or stressed you are about what you are dealing with. Spare your loved ones every now and then by getting it off your chest on this page. I will start you off! I'm Lilah, and I am spitting mad that I can't put weight on my right foot/ankle, which hurts like a banshee, and I can't support myself on a crutch to take its place because the …

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Have You Ever Felt Like A Bobbly-Headed Dashboard Dog?

More than 30 years ago when I was first married, my husband and I lived in a tiny, four-room apartment above his cousin’s garage. One of the rooms was a bathroom, thankfully. But since it was upstairs, the water pressure was non-existent. So, to take a bath, we sat on a one-step footstool in the middle of the tub with a 32-ounce plastic cup from a convenience store. We slowly filled the cup and poured the water on our heads and bodies, one cup at a time. Once when I was taking a bath, …

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Does Trying to Sleep Stress You Out?

Living in this fast-paced modern world comes with stress factors pressing in on us from every direction, and many people find sleep to be a much needed and still unattainable luxury. According to the National Institutes of Health (NIH), a minimum of 40 million Americans suffers from chronic, long-term sleep disorders. Another 20 million acknowledge experiencing sleeping problems occasionally. So, what makes chasing sleep different for those with Ehlers-Danlos Syndrome, Typ…

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Are You a Bruiser?

[amazon name="EDS Warrior Awareness T-shirt" url="https://www.amazon.com/gp/product/B07D1WMH5S/ref=as_li_tl?ie=UTF8&tag=eds3org-20&camp=1789&creative=9325&linkCode=as2&creativeASIN=B07D1WMH5S&linkId=a158bb005c62281f2575ed8a69eac44f"] EDS Type III - Hypermobile As a child in the 1970s when health supplements became all the rage, my mom was convinced that I had a serious Vitamin C deficiency because of how easily I bruised and how long I stayed bruised. No matter how…

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